Objectives: An important part of the disease control in Danish guidelines for care of patients with cystic fibrosis (CF) is a monthly sputum sample by tracheal suchtion. Coping to this unpleasant procedure in small children depends heavily on the support from parents and nurse. The objective of this study was to develop a tool to help parents and children to cope with tracheal suctioning. Methods: Three short videos showing how nurses perform tracheal suctioning to get a sputum sample from small children with cystic fibrosis were made. The videos were shown to and discussed with parents and children to help them identify their own challenges in coping with the procedure. The study was carried out in the outpatient clinic at the CF centre, Aarhus Univeristy Hospital. Results: The videos are a useful tool to convince the parents, nurses and children from the age of about four years that the child will succeed in coping with tracheal suctioning. Parents as well as children find the videos useful in preparation for the procedure. Only very few children below the age of five years have not yet learned to cope. Conclusion: Small children with CF can learn to cope with the unpleasant procedure of tracheal suctioning e.g. by watching and discussing exemplary videos of the tracheal suctioning procedure.
Journal of Cystic Fibrosis, 2014, Vol 13, Issue Suppl 2