1 Health, Man and Society, Department of Public Health, Det Sundhedsvidenskabelige Fakultet, SDU2 User Perspectives, Department of Public Health, Det Sundhedsvidenskabelige Fakultet, SDU3 Health, Man and Society, Department of Public Health, Det Sundhedsvidenskabelige Fakultet, SDU4 User Perspectives, Department of Public Health, Det Sundhedsvidenskabelige Fakultet, SDU
En sammenligning af MYCaW spørgeskema, interview data og en prioritetsliste
Objectives To compare the capacity of the MYCaW questionnaire, a priority list of concerns covered by validated questionnaires, and semi-structured interviews to identify patients’ personalized concerns and related changes. Design In a pragmatic trial on the effectiveness of energy healing as rehabilitation after colorectal cancer, a sub-sample of 31 participants completed the MYCaW questionnaire and the priority list and were interviewed before, during and after the treatment period. Setting Treatments were provided in healers’ clinics in Denmark. Main outcome measures For each participant convergences and divergences of the outcome measures are identified, and strengths and weaknesses of the three methods in regard to capturing personalized concerns and changes are discussed. Results Three patterns were identified: (1) in the intervention groups concerns stated in MYCaW were adjusted after experience with the treatment, while concerns stated in interviews and the priority list remained stable throughout the study; (2) emotional concerns were reported more often in interviews than in MYCaW, physical concerns were predominant in MYCaW, and quality of life was marked as a primary concern most frequently on the priority list; (3) participants reported greater improvement in interviews than in MYCaW. Conclusions Relevant concerns in the MYCaW questionnaire seem to require that participants are well acquainted with the treatment under study. The priority list directs participants to particular areas of concerns and markings are stable. Interviews are well suited to disclose concerns regarding sensitive issues, e.g. anxiety of relapse, and experiences of subtle, non-specific changes.
Complementary Therapies in Medicine, 2014, Vol 22, p. 690-700
methodology; energy healing; colon cancer; rehabilitation; personalized outcomes