1 The Department of Medicine and Nephrology C, Faculty of Health Sciences, Aarhus University, Aarhus University2 The Department of Paediatrics, Faculty of Health Sciences, Aarhus University, Aarhus University3 Institute of Science in Nursing, Faculty of Health Sciences, Aarhus University, Aarhus University4 Århus Universitetshospital, Skejby5 Department of Clinical Medicine - Department of Medicine and Nephrology C, Department of Clinical Medicine, Health, Aarhus University6 Department of Clinical Medicine - Department of Paediatrics, Department of Clinical Medicine, Health, Aarhus University7 Department of Clinical Medicine - Department of Medicine and Nephrology C, Department of Clinical Medicine, Health, Aarhus University8 Department of Clinical Medicine - Department of Paediatrics, Department of Clinical Medicine, Health, Aarhus University
Transition in adolescents across time, disease and gender Jette Rolf Svanholm 1,2, Mette Spliid Ludvigsen 1,3, Hanne Aagaard 1,4,5 1 Aarhus University Hospital, Denmark 2 Department of Cardiology 3 Department of Renal Medicine 4 Department of Pediatrics 5 Institute of Public Health, Aarhus University, Denmark Jeanette.Svanholm@skejby.rm.dk, Mette.Ludvigsen@skejby.rm.dk, Hanne.Aagaard@skejby.rm.dk Background: Adolescents do not get involved in the preparation and planning of their health care transition, which leaves them with negative experiences and feelings of not having their health care needs met. Despite a growing number of studies on transition in adolescents, literature is scarce on longitudinal studies (Kralik, Visentin & van Loon 2006).To qualify health care interventions this longitudinal study contributes to the development of knowledge about transition from the adolescents’ with congenial heart diseases, chronic kidney diseases and cystic fibrosis perspective. Objective: To study experiences of transition in adolescents with severe chronic diseases in the context of child-centred health care to adult-centred health care Research questions: • What are the adolescents’ experiences of transition being in a maturing and independence process and what is important to them? • What characterise their interaction with health care staff? • How is the communication between the adolescents and health care staff as perceived by the adolescents when focus is on their illness? Methods: Qualitative study, longitudinal design • systematic literature search • ethnographic fieldwork (Hammersley, Atkinson 2007) o participant observations of consultations between adolescents and health care staff o individual semi-structured interviews with the adolescents (Kvale, Brinkmann 2009). Participants Recruited from outpatient clinics at Aarhus University Hospital in Denmark. • Ten adolescents at 14 years of age are selected in each group. • Follow-up is planned at 15 and 17 years of age. Ethical considerations The adolescents will be informing about the project and it will be clarify to the adolescents and their parents that participation is optional, refusing have no treatment consequences and the adolescents are allow to step out of the project anytime. Participation demands written content. Analysis • phenomenological hermeneutics as described by Ricoeur(Ricoeur 1976) • comparative approach is employed to show central characteristics across time, disease and gender. Perspectives It is expected that this study will create knowledge about the existential and interpersonal challenges of adolescents in transition as seen from the • time perspective • diagnose perspective • gender perspective These results will make health care staff aware and conscious of transition among adolescents and enable them to act accordingly and thus improve quality and support to this group of patients. Referencer (skrives med lille skrift på posteren nederst til højre) Hammersley, M. & Atkinson, P. 2007, Ethnography: Principles in practice, 3. ed. edn, Routledge, London. Kralik, D., Visentin, K. & van Loon, A. 2006, Transition: A literature review. Kvale, S. & Brinkmann, S. 2009, Interviews: Learning the craft of qualitative research interviewing, 2. edition edn, Sage Publications, Thousand Oaks, Calif. Ricoeur, P. 1976, Interpretation theory: Discourse and the surplus of meaning, Texas Christian University Press, Fort Worth, TX.
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International Association for Adolescents Health 16 th European Annual Meeting, 2011