How does technology support this? Presentation of a study protocol
Background: Few randomized controlled trials have been conducted on the benefits of using informationtechnology to support the cancer patient pathway. The relatively low incidence and the complexity of cancer pathways make it difficult for the general practitioner to advise the patient satisfactorily. This may lead to diagnostic delay, delay in treatment, lack of continuity and seamless pathways and low patient satisfaction. Objective: Our aim is to clarify to which degree clinical information support systems can provide GPs and Our aim is to clarify to which degree clinical information support systems can provide GPs and patients with on-time and updated information about agreed care pathways and to examine the effect on delay, use of and adherence to guidelines and doctor and patient satisfaction. Subjects and Methods: We intend to conduct two randomized controlled trials to measure the effect of inserting URL links based on the ICD10 codes of the discharge letter. The cohort will consist of about 2000 patients enrolled in a mammography screening programme in two of five Danish regions. In the second study, we plan to enroll about 12000 cancer patients to measure the effect using an electronic questionnaire compared to using a paper questionnaire to create an extended data and feedback system. Results: Different outcome measures will be analyzed: Use of health care services, clinical satisfaction, patient experienced continuity, use of further tests and adherence to guidelines.